Adopting a child won't change the world, but for that child their world will change.

Wednesday, July 31, 2013

One month as a Sanders

Tomorrow marks one month since Mason's gotcha day.  Where has the time gone?  

It is so hard to believe that it has only been one month as it seems like he has always been here, but on the other hand time has flown so fast that it has already been a month since we were in China meeting him for the first time.  Does that statement makes any sense!?!

What a blessing Mason has been.  He is so full of life and ENERGY!  To look at him you would never guess that he has a complex heart defect.  Especially when he is jumping off of the coffee table or hanging by one arm on the monkey bars or sliding down the stairs head first.  This boy is ALL boy.  The boy with million dollar smile :)

Jayden has become his best friend and they hate to be apart.  Today was only the second time they have been apart since Mason became a part of our family and several times Mason kept asking for Jayden.  He also had to get stickers from the nurse to take home to Jayden.    

Today we went to see the Cardiology doctor at Children's Mercy Hospital.  We had to wait until today because about the time we got home Dr. Kaine went on vacation and he is supposed to be the best so we wanted to see him.  He also is the doctor that we have consulted with since October of last year when we first learned about Mason.  We first met with the nurse who did weight, height, blood pressure and checked the oxygen levels in his blood.  I was very curious about this last one and his O2 levels in his blood was 81%.  It should be between 96-98%.  This is why his lips turn slightly blue when he has been playing alot and he has some shortness of breath

He also had an EKG done and an echocardiogram.  He was such a trooper for the echocardiogram.  He had to lay still for almost 30 minutes while they took an ultrasound of his heart from three different the bottom of his sternum, over his heart and then at the base of his neck.  Just as soon as she was done he wanted the yucky gel wiped off and when she missed a spot he let her know by pointing it out. 

All of that took about an hour and half.  We then waited for the doctor to look everything over and then meet with us to formulate a plan.  This is what he told us...if I can get it all right.  

Normal hearts have four chambers...Mason's has two.  We already knew this.  He said many kids with this defect have the problem of too much blood to the lungs and not enough to the rest of the body causing damage to other organs in the body.  He has pulmonary stenosis, a narrowing of the vessel in the lungs which has restricted the amount of blood flow to the lungs and forced the blood to the other areas of his body.  Blessing number one!  

The doctor also said that many times kids with this defect have problems with their heart valves being weaker and allowing blood to back flow causing pressure problems.  Mason's valves are very strong and working properly.  Blessing number two!  

Dr. Kaine then told us that the Glenn shunt that was done in China looked great and was functioning very well.  Blessing number three!
He does have a small heart murmur and the oxygenated blood is still mixing with the non-oxygenated blood which is why his O2 levels are running lower then they should.  The final repair that Mason needs to have will correct this last problem.

Dr. Kaine said that because Mason's heart looks so good considering how complex his defect is 
that we do not have to have his final open heart surgery until next April.  Wow!  Blessing number four!!  

When we got Mason's file back in October of 2012, his file said his heart was unrepaired.  I think this scared away many potential families.  Even our China coordinator asked us if we were sure we wanted to move forward with him and that was after we had discovered on our own that he had had the first part of the repair done.

The photo that a wonderful family was able to get for us last fall
before we committed to adopting Mason.  If you look closely
you can see the scar on his chest confirming to us that he had
had open heart surgery done in China.
We are so thankful that we listened to God and moved out in faith to adopt this beautiful, energetic, smart little boy. 

We are currently waiting for a call to schedule a heart catheterization some time this next month.  This will give the doctors a detailed look at Mason's heart anatomy.  The cardiac team will then discuss his case and unless they find something unexpected we are planning surgery for April or May of next year.  This is such great news for us as we will now have more time to continue to bond with Mason.  We are also getting ready to go into a very busy time for our family.  Seth has already started soccer practice four times a week and Samantha will be starting volleyball practice on Monday four times a week.  Jayden will be going to kindergarten and we have decided to put Mason into preschool.  He learned so much from the Sunshine Academy in China that we do not want him to lose the English that he has already acquired.  He can write his numbers to 20 and most of his ABC's.   

A big thank you to everyone who has prayed for Mason and our family.  God has truly answered them.  We have been so blessed by these two little guys. 

1 comment:

  1. What a great report!!! Good news all around. Hard to believe its been a month already. I love seeing your sweet boys' pictures and I'm praying for a successful heart cath next month.